On April 18th and 19th 2024, the annual German ALS network symposium took place in Berlin. This symposium has been established in 2022 and comprises all partners of the German ALS/MND Network (MND-NET) and the Ambulanzpartner-Network.
Workshops on ALS phenotypes, genetic studies, Biomarker (surrogate marker) development, healthcare research, and clinical trials lead to intensive discussions between all partners and fostered joint projects.
We were able to welcome two representatives of the German patient association (Deutsche Gesellschaft für Muskelkranke) who brought the patients’ view and needs to our meeting.