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Self-help groups and patient organizations

We work closely with the following self-help groups and patient organizations:

DGM - Deutsche Gesellschaft für Muskelkranke e. V.

Self-help association that offers all relevant information for ALS sufferers and relatives online here:

SMA sufferers and their environment can find up-to-date information here:


For SMA patients

An initiative within the German Society for Muscular Dystrophy (DGM) at:

For HSP patients

Tom Wahlig Foundation for those affected by Hereditary Spastic Spinal Paralysis:

Information exchange forum