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MND-NET German Network for Motor Neuron Diseases
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General

Hardship program Tofersen

1. March 2023June 16th, 2023

Currently, approximately 25 patients are receiving treatment under the hardship program at a total of 11 MND-NET centers. The network has agreed on therapy standards and regularly exchanges information about the course of treatment.

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  • Home
  • For Patients
    • Amyotrophic lateral sclerosis (ALS)
    • Other motor neuron diseases
      • Spinal Muscular Atrophy (SMA)
      • Spinobulbar Muscular Atrophy (SBMA)
      • Hereditary Spastic Spinal Paralysis (HSP)
    • Therapy and treatment
    • Self-help groups and patient organizations
    • Study participation
    • LIPCAL ALS 2 Study
  • Research and Science
    • Clinical Studies
    • Collaborative Projects
    • Publications
  • For the Industry
    • Investigator Initiated Trials (IITs)
    • Industry-sponsored studies
  • MND-NET
    • Registry trial
    • Organization
    • Outpatient clinics and centers
  • News
  • Contact
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