We work closely with the following self-help groups and patient organizations:
Self-help groups and patient organizations
DGM - Deutsche Gesellschaft für Muskelkranke e. V.
Self-help association that offers all relevant information for ALS sufferers and relatives online here:
https://www.dgm.org/muskelerkrankungen/amyotrophe-lateralsklerose-als
SMA sufferers and their environment can find up-to-date information here:
http://www.dgm.org/muskelerkrankungen/spinale-muskelatrophie-sma
For SMA patients
An initiative within the German Society for Muscular Dystrophy (DGM) at:
For HSP patients
Tom Wahlig Foundation for those affected by Hereditary Spastic Spinal Paralysis:
Information exchange forum