General Archive | MND-NET German Network for Motor Neuron Diseases https://mnd-net.de/en/news/general/ Deutsches Netzwerk für ALS und andere Motoneuronerkrankungen Fri, 19 Jan 2024 09:30:18 +0000 en-US hourly 1 https://mnd-net.de/wp-content/uploads/2023/06/cropped-cropped-mnd-net-icon-7-32x32.png General Archive | MND-NET German Network for Motor Neuron Diseases https://mnd-net.de/en/news/general/ 32 32 Call for donations University Hospital Dresden https://mnd-net.de/en/2023/12/22/call-for-donations-university-hospital-dresden/ Fri, 22 Dec 2023 12:47:31 +0000 https://mnd-net.de/?p=2372 Psychosocial support for ALS

Der Beitrag Call for donations University Hospital Dresden erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> Psychosocial support for ALS

Der Beitrag Call for donations University Hospital Dresden erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> RTL visits the ALS center in Bonn for World ALS Day https://mnd-net.de/en/2023/06/21/world-als-day-rtl-visits-als-center-bonn/ Wed, 21 Jun 2023 12:17:27 +0000 https://mnd-net.de/2023/06/21/welt-als-tag-rtl-besucht-das-dzne-bonn/ On June 21st 2023 was World ALS Day. For this reason, RTL TV spontaneously visited the DZNE in Bonn and held an expert discussion with PD Dr. Patrick Weydt (head...

Der Beitrag RTL visits the ALS center in Bonn for World ALS Day erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> On June 21st 2023 was World ALS Day. For this reason, RTL TV spontaneously visited the DZNE in Bonn and held an expert discussion with PD Dr. Patrick Weydt (head of the ALS outpatient clinic in Bonn and scientist at the DZNE) on the state of ALS research and therapy development. Excerpts will be shown tonight between 18:00 and 18:30 on RTL West news. We are pleased that RTL is drawing attention to this important topic.

Background information is also available on Instagram @als_doc

RTL besucht zum Welt-ALS-Tag das DZNE in Bonn
RTL spoke with PD Dr. Patrick Weydt about the state of ALS research and therapy

Der Beitrag RTL visits the ALS center in Bonn for World ALS Day erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> Meeting of the MND-NET on 11th/12th of May 2023 in Berlin https://mnd-net.de/en/2023/05/12/meeting-of-the-mnd-net-on-11th-12th-of-may-2023-in-berlin/ Fri, 12 May 2023 11:42:48 +0000 https://mnd-net.de/2023/05/12/meeting-of-the-mnd-net-on-11th-12th-of-may-2023-in-berlin/ MND-NET members met for their annual meeting in Berlin on May 11th and 12 to discuss an update on ongoing and planned projects of the network.

Der Beitrag Meeting of the MND-NET on 11th/12th of May 2023 in Berlin erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> MND-NET members met for their annual meeting in Berlin on May 11th and 12 to discuss an update on ongoing and planned projects of the network.

Der Beitrag Meeting of the MND-NET on 11th/12th of May 2023 in Berlin erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> Hardship program Tofersen https://mnd-net.de/en/2023/03/01/hardship-program-tofersen/ Wed, 01 Mar 2023 08:30:00 +0000 https://mnd-net.de/2023/03/01/hardship-program-tofersen/ Currently, approximately 25 patients are receiving treatment under the hardship program at a total of 11 MND-NET centers. The network has agreed on therapy standards and regularly exchanges information about...

Der Beitrag Hardship program Tofersen erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

]]> Currently, approximately 25 patients are receiving treatment under the hardship program at a total of 11 MND-NET centers. The network has agreed on therapy standards and regularly exchanges information about the course of treatment.

Der Beitrag Hardship program Tofersen erschien zuerst auf MND-NET German Network for Motor Neuron Diseases.

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